Friday, September 21, 2012

Cardiology Appointment and Surgery Plans

Today was Mirabel's bi-yearly cardiology check up. We went into this appointment with more anxiety than we have in a while because Mirabel is getting big enough for her third (of three) major surgeries.
Mirabel is doing great, her oxygen levels haven't dropped since last time we were there, her energy levels and color are both good.
All that comes down to no surgery this year, no holidays in the hospital! We'll go back in 6 months are see where we are.

Wednesday, September 5, 2012

A little behind...

We don't get around to posting here much lately, I blame Facebook and how easy it is to just send pictures there to share with family and friends...
...That said, I'd like to introduce you to the newest member of the family -- Amelia Ann Stone, born 06/21/12.

She's a beautiful little girl who just started daycare yesterday. She looks a lot like Mirabel but I get the feeling she's going to have a completely different temperment (although that may just be because she cries every time I hold her).

Her big sister (who tells everyone she meets that she's a Big Sister) loves "her baby" so much that we often have to tell her to stop leaning on the baby and kissing her constantly.
We're having a pretty good summer,
and Amelia is starting to wake up and check out her world.

Mirabel may have her third heart surgery this fall but we'll definitely send an update when that happens.
Ta-ta for now, oh and BTW, did you see Stacy Lihn's speech at the DNC last night? If not you should because I think she speaks for all heart families on the importance of the Affordable Care Act.

Here's a link if that embed didn't work:

Take care,
The Stones

Monday, May 7, 2012

Catching Up

Um, okay, so last August is ... well, almost a year past. So ... we're a
little behind! But here's a quick synopsis:

- September: Mirabel started at Providence Mt. St. Vincent daycare, which
has been fabulous! We miss our old center, but it's great to have her in a
little more structure, with more kids her age.

- November: Right before she turned 3, she decided it was time to start
going on the potty. Woo hoo!

- Second Christmas in our new house. Dave limited himself to an 8 foot tree
... maybe we'll go for 12 next year.

- Spring 2012: Mirabel started sleeping in a big girl bed. Which means we
don't always get to sleep as long as we like, but she loves being able to
climb in and out.

- This Wednesday: Her next cardiology appointment, where we find out if the
Fontan is on our roadmap for this year. Her sats have been doing well, but
her stamina is obviously lower. It would be great to help her get to a
place where she can run and play longer, but it might get complicated
because -

- June: She's going to be a big sister!! We're expecting another girl in
about 7 weeks (eek!). So far, everything looks great. Which means I'm
panicking, cause what do I know about a healthy newborn?? :D

I promise pics of our big girl (and maybe the little one, too) for the next