course. During her cardio appointment on Friday, Mirabel's doctor
became concerned about her puffiness and some fluid he saw in her
lungs. Saturday she looked even puffier (despite going up on her
diuretic) and Sunday morning she was so swollen she could barely open
her right eye (I'll spare you that picture). We measures her sats, and
when they averaged 63 we knew it was time for her introductory trip to
the Children's ER.
Sure enough, after they got her stabilized with some Os and IV Lasix,
they admitted her to the floor to figure out what's going on. They
too a chest x-Ray and discovered that her lung looked better, but her
face remained puffy.
So this morning they did an echo, and are now concerned that there is
some narrowing at the site of her Glenn, where the superior vena cava
is connected to the pulmonary arteries. She is now scheduled for a
cath tomorrow morning so they can get a closer look at the site, and
also get some data on her heart function. If necessary, they may
balloon or stent the arteries to increase the flow.
She's now down to .1 L flow of O2 and fighting a nap she desperately
needs ... But otherwise feeling much better. We will update as possible.