Monday, August 31, 2009

Here we go again ...

So, we're back in the saddle again. Saddle meaning "the hospital", of
course. During her cardio appointment on Friday, Mirabel's doctor
became concerned about her puffiness and some fluid he saw in her
lungs. Saturday she looked even puffier (despite going up on her
diuretic) and Sunday morning she was so swollen she could barely open
her right eye (I'll spare you that picture). We measures her sats, and
when they averaged 63 we knew it was time for her introductory trip to
the Children's ER.

Sure enough, after they got her stabilized with some Os and IV Lasix,
they admitted her to the floor to figure out what's going on. They
too a chest x-Ray and discovered that her lung looked better, but her
face remained puffy.

So this morning they did an echo, and are now concerned that there is
some narrowing at the site of her Glenn, where the superior vena cava
is connected to the pulmonary arteries. She is now scheduled for a
cath tomorrow morning so they can get a closer look at the site, and
also get some data on her heart function. If necessary, they may
balloon or stent the arteries to increase the flow.

She's now down to .1 L flow of O2 and fighting a nap she desperately
needs ... But otherwise feeling much better. We will update as possible.

Tuesday, August 25, 2009

Thursday, August 20, 2009

Mirabel has a new trick.

As if she wasn't cute enough already.

Monday, August 17, 2009

Friday, August 14, 2009

Sunday, August 9, 2009

Hidden Picture Puzzle

I know it's hard to believe, but look closely at the picture below, there is a baby hidden somewhere in there.
Daddy has been waiting for over a year for Mirabel to fit in that onesie. We bought it at a sale because it was long sleeved and knit for Mirabel to have something to wear in the winter. Since then David has learned to check sizes before buying clothes.
Believe it or not we bought the onesie, then later found the socks and hat and even later found the matching blanket. (I - David - am such a dork).

Mirabel has actually had a pretty big week. She started to eat some cereal!!! Not much, but it's something. Grandma even bought her a new highchair so she can sit at the table like the rest of the family. Now the rest of the family has to get in the habit of eating at the table. It's going to be a long road before we can get rid of the NG tube, and who knows, maybe we'll opt for the G tube before it's over but we're moving along either way. If I didn't mention it before, she's been off oxygen completely since we came home from hospital. Well, not completely, she still uses oxygen, but she's getting it from the air like the rest of us, she's just doesn't need extra oxygen pumped into her nose.

Also, Mirabel is such a big girl she's sleeping in her own room now, for naps and overnight. She'll be off to college before we know it. She went to a party last night and charmed the socks off of everyone in sight. Basically she's just doing her baby thing. In a few weeks Mommy and Daddy can pick her up under her arms again and everything will be back to normal.

You've been very patient, now here are the pictures you've been waiting for.

Saturday, August 8, 2009

Preview of coming attractions.

Today was picture day but instead of posting pics, we're going to a party. Here's a little something to tide you over.

Friday, August 7, 2009

New photo

I've received a message thru my mother that someone thinks I need to
post pictures more often. Here you go.

Saturday, August 1, 2009

Inspecting Mirabel's 6th tooth...

...I realize that it's actually her 8th tooth. We didn't see that she
now has 4 up and 4 down. We thought she was tough just having surgery
but add cutting 3 teeth and the same time? That's just crazy!