Thursday, January 29, 2009
Wednesday, January 28, 2009
Tuesday, January 27, 2009
could tolerate her food, we brought the little princess home
yesterday! She was a little grumpy last night but seems to be in much
better spirits today. Or maybe I'm saying that cause she's been
napping most of the morning! Either way, we're glad to have her home.
Saturday, January 24, 2009
the Floor, enjoying her own private room.
She's doing pretty darn well - I'm waiting to speak to the
cardiologist, but the most current plan is to get her back up to her
full feeding amount (they had to stop them for the procedure and are
stepping her up slowly) and then discharge her.
In the meantime, we're just chilling here while Daddy hangs out on the
couch with his bad back.
Thursday, January 22, 2009
The narrowing of her aorta was pretty severe and they ended up placing a stent to make sure it stays open. Basically what they did was triple the size of the opening, from 3mm to almost 9mm. This should last her a while. Some time in the future they can expand it further, maybe up to 14mm, but eventually it will have to come out since this stent wont expand to adult size. (maybe they can just bundle that with her 3rd surgery).
Overall she tolerated the procedure well, no arrhythmias but they want to keep her intubated for a few hours until her body adjusts to the new blood flow. (Basically her body competes with her lungs for her blood and they wont to make sure one isn't beating up the other).
The bright side of all this is that Cristy and I have been able to eat in the hospital cafeteria twice today!
Just a quick note to let you know that Mirabel is back in the hospital.
First of all, she's doing okay, nothing emergent. Since the first of the week we noticed that she hasn't been feeling as well, she was coughing and sneezing and choking a little more than usual.
At her normal clinic visit yesterday they noticed that she is working a little harder to breathe and diagnosed a narrowing of her aorta which limits her cardiac output. They admitted her for observation and today she is going to have a heart cath and they are going to use a balloon catheter to widen the aorta.
She'll be in hospital until at least tomorrow, maybe as long as the rest of the weekend, but when this is all over she'll feel a lot better.
We'll update when we can, we know after all our time in the hospital that there is a lot of waiting and then everything happens all at once.
Thanks for keeping up with Mirabel, she really appreciates it.
Sunday, January 18, 2009
Sunday, January 11, 2009
Thursday, January 8, 2009
She seems unimpressed by the gallery behind daddy.
But at least she was awake to receive the her adoring fans...